In addition to informal networking, family mentorship, and social media interfaces such as Facebook, the SLO Foundation sponsors a national scientific and family medical conference every other year to support families affected by SLOS.
After families receive a diagnosis of Smith-Lemli-Opitz syndrome, they are often challenged in finding credible information and support. Parents’ time and energy can be consumed by caring for their child who is living the real-time challenges of SLOS, leaving little left to seek, explore, and advocate for themselves.
As an advocate for families, Smith-Lemli-Opitz Foundation shoulders the efforts in networking and in gathering information from those living and working with SLO. The Foundation fosters relationships and disseminates useful information to help relieve some of the stresses involved in living with the syndrome.
Smith-Lemli-Opitz syndrome is a lifelong disorder with no cure and limited treatment options. It is often misunderstood.
Many individuals who have the syndrome remain undiagnosed for long periods of time or indefinitely.
It is the goal of the Smith-Lemli-Opitz Foundation to fund research that fosters an understanding of SLOS for a proper and clear diagnosis, effective treatments, and ultimately a cure.
James raised over $1,300 for the SLOS Foundation with his hair shave, beating his goal of raising $1,000 for the charity.
An endowment fundraiser to provide an eventual annual source of support for the Foundation to help SLOS families.
The Smith-Lemli-Opitz Foundation advances the ability to collect SLOS tissue for medical research through generous donations.
Giving Hearts Day is February 9th, 2023.
Support the Foundation on this incredible day of generosity and support!
A golf scramble to benefit the Smith-Lemli-Opitz Foundation • Sunday, September 12th, 2021 • Lakeview Golf Course • Detroit Lakes, Minnesota
You cannot hope to build a better world
without improving the individuals.
To that end, each of us
must work for his own improvement,
and at the same time,
share a general responsibility for all humanity,
our particular duty being to aid those
to whom we think we can be most useful.”
You don’t have to go through life with Smith-Lemli-Optiz syndrome alone. Be in this together with us.
We work worldwide to improve the quality of life for people with Smith-Lemli-Opitz syndrome through educating and supporting families, spreading SLOS awareness, and funding research into the disorder.
The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.
