We came home from the NIH study empowered with knowledge, tests, and research which essentially saved our daughter's vision.
Kayleigh & Nick
We know you want to make life easier for family members living with Smith-Lemli-Opitz. Let us help you transform real desire into real support.
Below are ideas of some ways you can help and support your family as they navigate life with Smith-Lemli-Opitz.
Donations to the Foundation help all our families equally as our programs are here for everyone. For $250 (or more) you gift families with the priceless value of network support.
You can help your family attend a valuable and supportive
SLOS Family Medical Conference.
Give • $250 • $500 • $750 • or $1,000 to get them there!
Your support of the Smith-Lemli-Opitz Foundation enables it to continue its support of your family through its network, education opportunities, and research funds.
Purchase a welcome packet for $100 and have it sent from the Foundation to your family. This special care package will warmly welcome them on this journey.
We work worldwide to improve the quality of life for people with Smith-Lemli-Opitz syndrome through educating and supporting families, spreading SLOS awareness, and funding research into the disorder.
The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.