Gathering to learn and support
SLOS Conferences
The Foundation sponsors regular biennial national scientific and family medical conferences where physicians, scientists, and parents and caregivers can learn more from each other.
SLOS Conferences
2027 Conference To Be Announced
The Smith-Lemli-Opitz Foundation sponsors regular biennial national scientific and family medical conferences, where physicians, scientists, parents, siblings, and caregivers can learn from one another and collaborate.
Thanks to everyone who supported and attended our 2025 Conference in Boston, Massachusetts, on June 20th and 21st, 2025.
Testimonials
What Our Members Say
"The SLOS group has been so valuable because of the SLO physicians and conferences. AND the contact with other families is so needed."
"Our favorite things about the Foundation are the conferences where we are able to meet other families who share the same struggles. We appreciate the guest speakers and specialists who can help our children and they give us hope to help advocate for our daughter."
"We enjoy the connection to other families in similar situations to ourselves. We enjoy the conferences and any new information given by our doctors, scientists and specialists. Our 3 youngest all have Smith Lemli Opitz syndrome, from the left Aaron and Sean (fraternal twins), and Kyle."