To have access to the presentations from the 2023 SLOS Scientific Conference,
please submit a request below.
The SLOS Family Conference videos for 2023 and 2019 are also published below.
Accompanying 2019 Conference Presentation Slides are cited below the 2019 SLOS Conference videos
Many of the 2019 SLOS Conference videos above have accompanying presentation slides. Search each subject for the respective slides.
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Growth and development of children with SLOS can be delayed and affected by the spectrum of disease severity, with decreased weight and final height.
Medical specialists have developed growth charts to improve the care of individuals with SLOS.
With exception to the extremes of growth, there is limited evidence to suggest that failure to attain optimal growth, in mild to moderate degrees, leads to damaging consequences for the individual. Just like with the normal growth curves, a crossing of percentiles can be a sign of an intercurrent illness.
Many of our families download and bring the SLOS growth charts to their pediatricians to help them understand the decreased growth of our children.