- P.O. Box 10598
- Fargo, North Dakota 58106-0598
The MetabERN Patient Therapeutic Education Programme hosted a webinar on February 18th, 2026, aiming to provide information about Smith-Lemli-Opitz syndrome (SLOS) and increase knowledge and understanding of SLOS symptoms from a holistic perspective for patients and their families.
Did you miss the webinar?
Do you want to listen to it again?
Click the button below to visit a page containing the webinar video recording.
The 2025, 2023, and 2019 Family Conference videos are published below.
Click on the 2019 header titles to filter the videos by content.
Accompanying 2019 Conference Presentation Slides are cited below the 2019 SLOS Conference videos
Many of the 2019 SLOS Conference videos above have accompanying presentation slides. Search each subject for the respective slides.
Subscribe to the Smith-Lemli-Opitz Foundation YouTube channel and be notified each time we release a new video.
Download this guide for a comprehensive overview of Smith-Lemli-Opitz syndrome and the Smith-Lemli-Opitz Foundation.
Growth and development of children with SLOS can be delayed and affected by the spectrum of disease severity, with decreased weight and final height.
Medical specialists have developed growth charts to improve the care of individuals with SLOS.
With exception to the extremes of growth, there is limited evidence to suggest that failure to attain optimal growth, in mild to moderate degrees, leads to damaging consequences for the individual. Just like with the normal growth curves, a crossing of percentiles can be a sign of an intercurrent illness.
Many of our families download and bring the SLOS growth charts to their pediatricians to help them understand the decreased growth of our children.
