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Education Resources

Shared knowledge from the best of minds specializing in the implications of living with Smith-Lemli-Opitz syndrome
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Videos about Smith-Lemli-Opitz Syndrome

The 2023 and 2019 Family Conference videos are published below.
Click on the 2019 header titles to filter the videos by content.
Accompanying 2019 Conference Presentation Slides are cited below the 2019 SLOS Conference videos

2023 SLOS Family Conference - Seattle, WA

2019 SLOS Family Conference - Bethesda, MD

Accompanying Presentation Slides

Many of the 2019 SLOS Conference videos above have accompanying presentation slides. Search each subject for the respective slides.

Interested in more?

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About SLOS and the Foundation

SLOS Informational Guide

Download this guide for a comprehensive overview of Smith-Lemli-Opitz syndrome and the Smith-Lemli-Opitz Foundation.

Growing and living with SLO

SLOS Growth Charts

Growth and development of children with SLOS can be delayed and affected by the spectrum of disease severity, with decreased weight and final height.

Medical specialists have developed growth charts to improve the care of individuals with SLOS.

With exception to the extremes of growth, there is limited evidence to suggest that failure to attain optimal growth, in mild to moderate degrees, leads to damaging consequences for the individual. Just like with the normal growth curves, a crossing of percentiles can be a sign of an intercurrent illness.

Many of our families download and bring the SLOS growth charts to their pediatricians to help them understand the decreased growth of our children.