- P.O. Box 10598
- Fargo, North Dakota 58106-0598
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Download this guide for a comprehensive overview of Smith-Lemli-Opitz syndrome and the Smith-Lemli-Opitz Foundation.
Growth and development of children with SLOS can be delayed and affected by the spectrum of disease severity, with decreased weight and final height.
Medical specialists have developed growth charts to improve the care of individuals with SLOS.
With exception to the extremes of growth, there is limited evidence to suggest that failure to attain optimal growth, in mild to moderate degrees, leads to damaging consequences for the individual. Just like with the normal growth curves, a crossing of percentiles can be a sign of an intercurrent illness.
Many of our families download and bring the SLOS growth charts to their pediatricians to help them understand the decreased growth of our children.
We work worldwide to improve the quality of life for people with Smith-Lemli-Opitz syndrome through educating and supporting families, spreading SLOS awareness, and funding research into the disorder.
The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.
