We came home from the NIH study empowered with knowledge, tests, and research which essentially saved our daughter's vision.
Kayleigh & Nick
Be notified with new information about SLOs and its treatments.
Those who know what you are going through will provide valuable support.
Lifetime membership to resources and relationships to improve your life with SLOs.
Upon submitting your registration information, you will receive a response via email from the Smith-Lemli-Opitz Foundation approving your membership. You will receive an annual email to confirm your information and lifetime registration.
We work worldwide to improve the quality of life for people with Smith-Lemli-Opitz syndrome through educating and supporting families, spreading SLOS awareness, and funding research into the disorder.
The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.