![Rare Disease Day • Beyond the Diagnosis image featuring Lexi](https://www.smithlemliopitz.org/wp-content/uploads/2024/03/lexi-post-rare-disease-day-300x192.jpeg)
Rare Disease Day
Happy Rare Disease Day! The Beyond the Diagnosis exhibit at the EVERSANA National Meeting featured one of our own.
We came home from the NIH study empowered with knowledge, tests, and research which essentially saved our daughter's vision.
Kayleigh & Nick
Happy Rare Disease Day! The Beyond the Diagnosis exhibit at the EVERSANA National Meeting featured one of our own.
New Milestones Reached in Fundraising
during Giving Hearts Day 2024
Thanks to you!
The Smith-Lemli-Opitz Foundation advances the ability to collect SLOS tissue for medical research through generous donations.
We work worldwide to improve the quality of life for people with Smith-Lemli-Opitz syndrome through educating and supporting families, spreading SLOS awareness, and funding research into the disorder.
The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.