We came home from the NIH study empowered with knowledge, tests, and research which essentially saved our daughter's vision.
Kayleigh & Nick
Smith-Lemli-Opitz
Join the journey of collaborating with our elected leaders in helping those affect by SLOS.
Your experience matters and can be crucial in leaders understanding how they can help and take action.
They are elected by you and are your voice. Introduce them to Smith-Lemli-Opitz and work with them to find legislative support.
Why go it alone when a team brings more opportunity? Gather others, collaborate, and inspire leaders to act.
The Smith-Lemli-Opitz Foundation is a charity organization located in the United States of America.
The information below references the United States of America government leadership and proceedings.
Use the button below to start your search for your Senators and how to connect with them.
Start SearchUse the button below to start your search for your House Representatives and how to connect with them.
Start SearchWe work worldwide to improve the quality of life for people with Smith-Lemli-Opitz syndrome through educating and supporting families, spreading SLOS awareness, and funding research into the disorder.
The Smith-Lemli-Opitz Foundation is a registered charitable organization. Donations are tax-exempt under IRS 501(c)(3), ID #23-2635206.