The Official Smith-Lemli-Opitz | RSH Foundation

The 2019 Smith-Lemli-Opitz Family Medical Conference
will be held in Bethesda, MD (outside of Washington DC)
from JUNE 27th – 29th, 2019

Learn More & Register Here

Families and friends of individuals with Smith-Lemli-Opitz Syndrome will gather for the SLO Family Medical Conference June 27 – 29, 2019.

About the Foundation:

Smith-Lemli-Opitz | RSH Foundation is a non-profit organization dedicated to supporting families, individuals and professionals dealing with Smith-Lemli-Opitz syndrome. By providing a network of ongoing communication, funding related research, and raising awareness, we are committed to enhancing the quality of life of affected individuals while improving on current treatment methods and striving towards a cure.

The Smith-Lemli-Opitz | RSH Foundation was created in 1988 to give a group of 37 families with SLO | RSH children a network to exchange experiences and information about SLO | RSH. Since then, the group has grown to more than 200 families in the United States and across the world.

The Foundation, in conjunction with volunteers, set up e-mail groups for families to contact each other informally. This provides immediate support for families to ask questions, share in joyful times and share in grief or frustration. Additionally, the Foundation provides regular newsletters, family support, family contact information, specialist contact information, information about ongoing research, and it sponsors regular national meetings where physicians, scientists, and parents can meet to learn more from each other. Another goal of the Foundation is to raise and provide funds to promote research into treatments and ultimately a cure for SLO | RSH Syndrome.

 

 

JOIN THE FOUNDATION TODAY:

2018 SLOS LIFETIME MEMBERSHIP FORM TEMPLATE

Growth Charts Full Article

SLOS Cookbook:

Thank you to Kate Haas and the Bionutrition Unit at OHSU for allowing the SLO Foundation to include a copy of their SLO Cookbook on our website.

2013.06.11 SLOS Cookbook FINAL copy

 

Please click HERE to see photos of past conferences.