2019 SLOS Family & Medical Conference

Bethesda, MD

 

June 27th – 29th, 2019 (Thurs. – Sat.)

YOU ARE INVITED!

The SLO/RSH Foundation is pleased to host the 2019 SLOS Family & Medical Conference in Bethesda, MD. This conference provides families a fantastic way to learn more about Smith-Lemli-Opitz Syndrome and to meet other SLO families. Many lifelong friendships have been formed at prior conferences! We are currently in the process of finalizing speaker sessions for the conference.  They will be posted online within the month.

CONFERENCE SCHEDULE

CONFERENCE REGISTRATION

The SLO/RSH Foundation is pleased to offer the discounted prices below to Lifetime Members and their family members. Conference fees include all presentations, continental breakfasts and lunches. A Pizza Pub Quiz night will also be provided on Thursday night for those interested!

Thank you to the families who are fundraising for the SLO/RSH Foundation to ensure we are able to subsidize the costs of the conference for families. We continue to look for donations and sponsorships to offset the cost of the conference. Please let us know if you are aware of a business or individual that would be willing to sponsor all or part of this special event.

SPECIAL PRICING FOR LIFETIME MEMBERS: (due: 06-12-19)

1 SLO Parent – $100.00
2 SLO Parents – $150.00
Adults – $150 per person
Children (13 – 18 years) – $100 per child
Children (6 – 12 years) – $50 per child
Children (0 – 5 years) – FREE
Children and adults with SLO attend the conference for FREE

NON-LIFETIME MEMBER PRICING: (due: 06-12-19)

Adults – $250.00 per person
Children (13 – 18 years) – $150 per child
Children (6 – 12 years) – $75 per child
Children (0 – 5 years) – FREE
Children and adults with SLO attend the conference for FREE

CONFERENCE REGISTRATION

HOTEL INFORMATION

Hotel Name:
DoubleTree by Hilton Hotel Bethesda – Washington DC

Hotel Address & Phone:
8120 Wisconsin Ave.
Bethesda, Maryland 20814-3624
1-(301)-664-7302

ONLINE HOTEL RESERVATION:

Group Name: Smith-Lemli-Opitz Syndrome Family Conference 2019
Group Code: SO6
Earliest Block Check-in: 26-JUN-2019
Latest Block Check-out: 30-JUN-2019

HOTEL RESERVATIONS

ROOM RATES:

(price & block room counts) **
$169.00 per night + taxes
06-26-19 (Wed):  30 rooms
06-27-19 (Thu):  40 rooms
06-28-19 (Fri):  40 rooms
06-29-19 (Sat):  20 rooms

**ROOM BLOCK EXPIRES 05-29-19:

Please note that the $169.00 special price block reservation link expires on Wednesday, May 29, 2019. Rates and availability of rooms cannot be guaranteed after this time. If you make plans to stay at a different hotel, please let us know at which hotel you will be staying.

ROOM BOGO (Buy One, Get One):

Due to the generosity of the Wolinetz family who created the Harper Wolinetz Memorial Travel Scholarships, the SLO/RSH Foundation is again pleased to offer up to 26 ($200.00) hotel vouchers for families coming to the conference. This is offered as a “Buy One Hotel Block Room, Get One Hotel Block Room FREE.”

  • Hotel BOGO vouchers are offered on a first come/first serve basis, so make your reservations early. There are only 26 available.
  • Hotel BOGO vouchers are NOT offered for rooms reserved outside of the official block: Smith-Lemli-Opitz Syndrome Family Conference 2019 (code SO6)
  • Hotel BOGO vouchers are for families staying at the DoubleTree by Hilton Hotel Bethesda ONLY. No exceptions will be made.
  • Hotel BOGO vouchers may not be used for other travel expenses or for hotels not included in the block.
  • Hotel BOGO vouchers may not be exchanged for cash.
  • Families are responsible to book their own rooms and reserve them under their own credit cards. Hotel BOGO vouchers will applied to the family bills ONLY after the 2nd night of stay has been completed.
  • Please note that the $169.00 special price block reservation link expires on Wednesday, May 29, 2019. Rates and availability of rooms cannot be guaranteed after this time. If you make plans to stay at a different hotel, please let us know at which hotel you will be staying.

NO CHILD CARE PROVIDED

The SLO Foundation does not provide nursing or childcare, so please bring activities/movies to keep your children entertained. Please refrain from bringing play-dough, permanent markers, or anything that will leave lasting marks, as the hotel will charge us for any cleaning services required above and beyond their normal procedures.