Frequently Asked Questions

Welcome to the FAQs for Smith-Lemli-Opitz Syndrome (SLOS). This area contains information based on parent experiences that we hope will help initiate you into the world of SLOS as well as offer some information about the most common issues. Please note that any medicines, therapies, medical advice, or anything of that nature that is mentioned here should be discussed with your doctors prior to administration; each child is different and the suggestions may not be appropriate for your situation. The information here has been compiled mainly from the email support group archives and SLOS conferences. We wish you well in your new journey as parents, relatives or friends of children with SLOS and we encourage you to join the email support group where you may ask questions of other families and friends, and to share in both the good times and the not so good times.