2017 Smith-Lemli-Opitz Family Medical Conference – Cincinnati, OH

March 10, 2017


The SLO/RSH Foundation is pleased to host the 2017 SLOS Family & Medical Conference. This conference is a fantastic way for families to learn more about SLOS and to meet other SLOS families. Many lifelong friendships have been formed at prior conferences! As in prior years, the 2017 conference will have a split track. While families are attending sessions geared towards their needs, scientists working with SLOS will have their own meetings and presentations. The two groups will come together on Saturday for clinical presentations and a Q&A panel discussion with SLOS specialists. We are currently in the planning stages for speaker sessions. Please take the time to compile questions you have or provide input on topics you would like to have more information on. If you submit questions now, we can provide them to the appropriate presenters so that they can encompass them in their presentations.


  •  SLO Family Medical Conference: June 23rd – 24th, 2017
  •  SLO Scientific Conference: June 22nd – 23rd, 2017
  •  The first “SLOS Awareness Day” Celebration: June 24th, 2017


The SLO/RSH Foundation is pleased to offer discounted prices to Lifetime Members and their family members. Conference fees include all presentations, lunch and dinner on Friday and Saturday, and beverages and snacks throughout the sessions. The actual cost that the Embassy Suites charges for the conference (meals/snacks/conference) is over $200 per person. Thank you to the people who fundraise for the SLO Foundation to ensure that we can subsidize the costs of the conference to a reasonable amount for families. We continue to look for donations and sponsorships to offset the costs to our families. Please let us know if you are aware of a business that would be willing to sponsor all or part of this special event.


SLOS Children – FREE
SLOS Parents (up to 2 parents) or Caregiver – $100.00
Adult (+ Adult Meals) – $150.00 
Child <18 years (+ Adult Meals) – $100.00
Child <18 years (+ Child Meals) – FREE


Adult (+ Adult Meals) – $250.00
Child 3 – 17 years (+ Child Meals) – $50
Child <2 years (+ Child Meals) – FREE

If you would like to register to become a Lifetime Member and receive discounted ticket prices, you can Register for Lifetime Membership online or print and complete the Lifetime Registration Form and send it by mail to the SLO Foundation (PO Box 10598, Fargo, ND  58106-0598) with your $25 payment. After registering, you will receive an email with instructions for accessing your discounted ticket prices.


Non-members can register for the conference ONLINE at NON-MEMBER CONFERENCE REGISTRATION.

Lifetime Members can register for the conference ONLINE at LIFETIME MEMBERSHIP CONFERENCE REGISTRATION. (password required)  If you are a Lifetime Member of the SLO Foundation but do not have this password, please contact Mandy Black at smithlemliopitzfoundation@gmail.com.

Register by FORMS:  (for those who don’t want to register online)

Both Nonmembers and Lifetime Members can register by mail: print and complete SLOS Conference Registration Form and send to SLO Foundation c/o Mandy Black – PO Box 904, Barboursville, WV 25504  along with proper payment no later than June 10, 2017.

For any questions, email Mandy Black:  smithlemliopitzfoundation@gmail.com


Embassy Suites Cincinnati- RiverCenter
10 East Rivercenter Blvd, Covington, KY 41011 1-800-EMBASSY / 859-261-8400

KING: $145 per room/night + tax = $161.39 per room/night
QUEEN DOUBLE: $155 per room/night + tax = $172.52 per room/night
(Room rate includes daily hot breakfast)

Online block reservation link: SLO CONFERENCE HOTEL BLOCK

The SLO/RSH Foundation is pleased to offer a Buy One, Get One Free hotel room incentive! This offer is first come, first served, so we encourage you to make hotel reservations as soon as possible. Families are responsible for booking their own rooms. Room costs are not included in the cost of the conference. Please note that the room block is limited and will expire on June 2, 2017. Rates and availability of rooms cannot be guaranteed after this time. If you make plans to stay at a different hotel, please let us know at which hotel you will be staying.


Conference t-shirts are available for purchase! We will only be ordering the sizes and quantities of T-shirts that we receive payment for, so it is important to fill out this information and submit your payment no later than May 1st, 2017. Payments received after the deadline will be refunded. T-shirts are $15.00 each, $17.00 for XXL & XXXL.


The SLO Foundation does not provide nursing or childcare, so please bring activities/movies to keep your children entertained. Please refrain from bringing play-dough or anything that will leave lasting marks, as the hotel will charge us for any cleaning services required above and beyond their normal procedures. As in past years, there will be a separate children’s activity room near the conference meeting room in case your child needs a break from the sessions.

If you have any questions, don’t hesitate to contact us!

Conference Organizer:
Mandy Black, SLO Foundation Vice President & Conference Organizer: (304) 751-0024
PO Box 904
Barboursville, WV 25504