3rd Annual Alexis Black Walk

Hosted by: Jason, Mandy and Alexis Black

The event will start on: 07 Aug 10 10:30

And will end on: 07 Aug 10 13:00

At Ritter Park, Huntington, West Virginia

1571 Ritter Park Drive , Huntington West Virginia

http://www.firstgiving.com/3rdAlexisBlackWalk

Posted by: lexi   

Available tickets:

• Unlimited "No ticket" tickets

Please join our fight! Right now I am helping my mommy & daddy get ready for the 3rd Alexis Black Walk to benefit the Smith-Lemli-Opitz/RSH Foundation. It will be held on Saturday August 7, 2010 at Ritter Park in Huntington, West Virginia. Walk registration begins at 10:30 a.m., and the walk will start at 11:00 a.m. This is a family event, so bring the kids, and we're sure to have a fun day!! Lunch will be provided following the walk, and there will be fun activities for the kids, including an inflatable jumper! We will also be having a silent auction with some great items! In the last 2 years, with your help we have raised almost $21,000 for the SLO/RSH Foundation at the Alexis Black Walk, not to mention a lot more awareness of the disease.

All funds donated are tax-deductible and are given directly to the Smith-Lemli-Opitz/RSH Foundation, a non-profit organization dedicated to helping raise awareness of SLOS. The SLO/RSH Foundation also provides grants to scientists researching SLOS in hopes of finding a cure, and they help SLOS families connect for support through an e-support group, a biannual conference (which we will be attending this year!), and semi-annual newsletters.

I bet you are thinking about how busy you will be this summer…and what if you cannot come? Can you still donate? Absolutely!! We will be accepting credit card donations through this secure website, or you can mail a donation to SLO/RSH Foundation, c/o Jason & Mandy Black, PO Box 904, Barboursville, WV 25504 (make checks payable to SLO/RSH Foundation).

Thank you so much for joining in my fight to find a cure for my syndrome! By making your donation, we are one step closer to kids with SLOS leading healthier lives! I hope to see you there!

Love,
Lexi Black
(and my mommy & daddy!)

p.s. Don't forget to ask your company if they will match your donation! Many families do this in honor of other SLOS children. WE WALK IN HONOR OF AND TO BENEFIT ALL KIDS WITH SLOS!